onceuponaroom.org
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| Alexandra (far right) with the Once Upon a Room "angels" |
I love Friends with Causes because it shines a spotlight on smaller charities, usually started by one or two people (almost always women). The other evening it was Once Upon a Room, an organization that decorates rooms for children primarily i the cancer centers at Childrens Hospitals. They are about to go national.
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| The very philanthropic and kind Kate Edelman Johnson and me |
Once Upon a Room provides an invaluable service to children in the hospital while fighting serious, life threatening illnesses or acute trauma often resulting in permanent disabilities and months of medical treatment and extended outpatient care. Through different events and programs, we are able to bring joy to their hospital stay and beyond.
Patient and Family Events: Events are planned to allow patients and families to have a moment of fun leaving behind their diagnosis, struggle and fight. Once Upon a Room provides experiences for all to enjoy.
Room program: Based on the child’s likes and special needs, we customize a plan to decorate their hospital room with items they can take home with them as they continue their recovery. We create a very personal home-like environment from what was once a cold and stark space. It’s important to remember that while these children are in the hospital, for most, their fight is far from over. Everything the patient receives from Once Upon a Room is theirs to keep will go home with them.
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| On of my partners-in-crime for decades--Ames Cushing |
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